Ileostomy and Internal Pouch Association, known as IA, is a registered charity supporting people living with an ileostomy or internal pouch, their families, friends and carers.
DonateOur Research Projects
Development of core outcome sets for gastrointestinal recovery after surgery and surgical disease
Develop a set of core outcomes for ileus and small bowel obstruction following surgery and disease.
DiSCO: Defining Standards in Colorectal Optimisation
Improving patient outcomes following surgery through pre-op preparation or ‘pre-habilitation’.
HALT – Hernia Active Living Trial, a feasibility study of a physical activity intervention to improve quality of life in parastomal hernia
Date: 2020
Looking at the impact of exercise on parastomal hernias and bulges in people with a stoma.
The PROPHER study: Patient Reported Outcomes after Parastomal Hernia treatment – a prospective international cohort study
Date: 2019
Looking at surgical and non-surgical techniques in managing parastomal hernias to determine best treatment.
The PAPooSE Study: Pregnancy outcomes and experience in Patients with ileostomies
This study aims to establish the informational needs of female patients following stoma surgery who wish to consider starting a family and record patient experiences during pregnancy with a stoma, so that patients can be given the best information to help them make future decisions.
Understanding day-to-day well-being and self-management practices in people with a stoma.
This study will gather data on participants in real-time over seven days, allowing the research team to gather data which can translate into the development of interventions which can have an impact in participants’ everyday lives.
Stomasense: A New Route to the Proactive Detection and Management of Leaks within Ostomy Pouches
In this study, the research team have developed a sensing system that can detect the early onset of stoma pouch failure – providing an alert that allows the patient to replace the pouch before catastrophic seepage of bowel/bladder content. They have demonstrated the proof of principle of the system with a limited 10 patient human trial.
PRESTO: Development of a new patient reported outcome measure (PROM) to assess psychosocial response to stoma in people with IBD
This study aims to develop a new questionnaire informed by the experiences of those living with a stoma for IBD, so that they can report outcomes relevant to the issues that matter to them.
